Yesterday Bob and I spent 8 hours at the hospital / clinic. Started at 730 am with a bone marrow biopsy, then met with the insurance specialist to tell us that we’d have to pay approximately $8,000 out of pocket for this transplant (and that’s WITH insurance), then to the hospital for more insurance talk, then a chest x-ray, CT scan, EKG, echocardiogram, pulmonary function test…had a quick lunch at the hospital cafeteria then back to the clinic to meet with the transplant coordinator to discuss our schedule for the next month – we start transplant March 2nd, and then finally met with the psychologist. (good news – we’re not crazy!)
Stopped at Menchies frozen yogurt on the way home and got ‘dinner’ – thanks Kimmie. Home by 5:30…in bed by 5:40. Exhausted.
This morning mom had her bone marrow biopsy – waiting for results to tell us whether or not she stays with the same chemo regime or changes to something different. She’s sore, but okay. Just tired. And tired of it all.
This evening Bob, Aimie, Katie and I went to a Bone Marrow Transplant Patient and Care Giver Class at the hospital. The RN coordinator who conducted the class came up to us during the break to visit…”hey you guys! What are you doing here again?” It sucks to be popular at a bone marrow transplant class.
After class we stopped by the hospital gift shop and purchased each of us HUGE ‘Kardashian’ type rings; or as we call them the “care taker rings”. Then we had dinner at a real restaurant (not that frozen yogurt isn’t a real dinner….)
We talked about the class, the plan for the next month, medical power-of-attorney, stress relief plans, life, death, etc. Normal dinner conversation as of late.
So many similarities. So many differences. God is the same. Our faith is the same. Praying that results are the same.
Sometimes it feels like we are living a different life than the world around us. Like we’re outside looking in…or is it inside looking out?
Why do I feel the need to constantly tell myself, “I’m okay. I’m okay. I’m okay.” Reading my Bible every day. Hanging on to His words. Looking for Him to talk to me, for Him to guide me. I will follow Him. He has never let me down.